Perspectives of adolescents with severe obesity on social Media in Preparation for weight-loss surgery: a qualitative study

The prevalence of severe obesity BMI ≥ 120% of the 95th percentile or BMI ≥ 35 kg/m²) in adolescents (ages 12 to 21 years) remains elevated at 7.7% and is associated with impairments in quality of life and significant comorbidities such as type 2 diabetes, cardiovascular disease, obstructive sleep apnea [1]. Although studies are limited, bariatric surgery coupled with lifestyle behavior change has documented weight-loss achievements of 30% and significant improvements in glycemic control, cardiovascular disease risk compared with 5% or less with lifestyle interventions alone for the treatment for severe obesity in adults and adolescents [2‐6]. To encourage long-term lifestyle behavior change, most third-party payers require medical weight management as a part of the preoperative assessment process for prior authorization. Medical weight management typically consists of 3 to 6 months of preoperative dietary, activity, and lifestyle counseling and is typically completed concurrently with medical, surgical, nutritional, and psychological evaluations [7]. Although the preoperative assessment process is largely viewed as a period to foster engagement between the patient and program as well as to motivate patient adherence, little is known about effective ways to support adolescents in order to achieve these goals.

Previous studies have suggested that maintaining engagement in a weight loss program is associated with larger weight losses [8, 9]. Support group attendance in adolescents is associated with increased clinic attendance which when seen in adults, has been associated with weight-loss and post-operative outcomes [10, 11]. Increases in internet use has led to the use of social networking as a vehicle for the delivery of healthcare information [12]. According to survey data, approximately 95% of adolescents in the United States use social media and have internet access [13]. Preliminary data suggests that capitalizing on adolescent use of social media for peer support may be a method to promote engagement, meet health goals, and potentially enhance patient retention in a medical weight management pre-operative program [9, 14‐16]. Preoperative assessment with adolescents preparing for bariatric surgery may be an ideal time period to leverage this tool.

Although bariatric surgery produces significant weight loss in adolescents, additional interventions are necessary for ongoing weight management [17]. To date, there has been limited evidence with regard to the use of social media as a weight loss modality or support platform in adolescents with severe obesity [15, 18‐23]. The use of social media can avoid the challenges of travel, missing work and school that hinder in-person interventions. However, for social media to be a successful option for treatment augmentation and adherence, the adolescent perception of social media use, and perceived facilitators and barriers to treatment need to be examined. The objectives of this study were to utilize qualitative methods to: 1) assess the perceived role of social media as a support tool for weight-loss, and 2) identify motivators and constraints to lifestyle changes in adolescents with severe obesity preparing for weight-loss surgery.

This is a qualitative analysis utilizing data from a single-arm feasibility pilot study, Facilitating Accomplishments through a Community Experience (FACE) conducted in participants from Southeastern Pennsylvania. The results of the main study have been provided elsewhere [16]. Briefly, males and females aged 13 to 20 years were eligible if their BMI (m/kg²) was ≥35, they had a cell phone with a data plan and texting capabilities, and were enrolled in a medical weight management program in preparation for surgery. In the medical weight management program, youth attended monthly in-person clinic visits with 1 or 2 providers including: a dietitian, physician, nurse practitioner, exercise physiologist, or psychologist, for 45 min and a monthly in person support group lead by a clinical psychologist. Participants were excluded if they had syndromic or secondary obesity, a developmental delay, untreated depression or psychosis, an eating disorder other than binge eating disorder, or active substance abuse.

Thirteen adolescents with a mean age of 16 ± 1.30 years enrolled and completed the 12 week social media intervention. See Table 1 for participant baseline characteristics. Secondary to rapid insurance approval for surgery, two adolescents had the sleeve gastrectomy earlier than anticipated: one with surgery 2 weeks prior to the baseline visit and one with surgery 4 weeks into the 12-week intervention. Comments from these subjects were included as they did not deviate from the themes of the rest of the group. Monitoring this additional data was important in order to track potential bias of these individuals and provide a richer understanding of the experience.

Thematic analysis approach was used to examine the participant generated content on the social media platform [28]. Analysis of intercoder reliability for this study revealed near perfect agreement (mean κ = .99; range, 0.84–1.00). This result was supported by percentage of agreement analysis, which yielded a mean of 99% (range, 93 to 100%) agreement of all codes [26]. Resultant codes were organized into three thematic categories: 1) social media experience, 2) motivators for lifestyle change, and 3) perceived barriers to lifestyle changes and social media participation, with subthemes as needed. Table 2 provides an overview of themes, subthemes, and illustrative quotes.

Adolescents with severe obesity preparing for bariatric surgery reported that a private social media group provided accountability, social support and strategies for healthy behaviors. Reported challenges to social media and behavioral health change participation included time constraints. Additional perceived challenges to making lifestyle changes were negative peers, difficulty with planning and tracking. Motivations for lifestyle changes while preparing for surgery identified were family support, personal goals and aspirations, and non-scale victories.

Adolescents undergoing bariatric surgery require ongoing psychosocial support which can be augmented in a support group [29, 30]. A social media outlet could deliver a platform in which it provides enough privacy but a venue of where these adolescents can find support from other peers without judgment. Similar to in-person weight management groups, the social media group offered the feeling of being part of a close community that allowed patients to draw on the support of their peers [18].

The social media platform permitted adolescents to share their common barriers with severe obesity face including the difficulties of committing to healthier changes. Even with the ability to login to the support group at the convenience of the participant, challenges to participations included other commitments such as school or work, time constraints, lack of support, and breakdown of exercise equipment. This reflects the inherent challenge of time management and setting priorities, requiring higher levels of executive function which have been found to be diminished in adolescents with obesity [31]. Similar time constraints were identified in qualitative study exploring perspectives of adolescents enrolled in weight management programs without social media support [32].

Interventions using social networking have been shown to lead to reduction in BMI in adults with obesity and offer the potential to be much more practical for day-to-day use when compared to traditional approaches that include cost and time for travel [33, 34]. This study coupled with prior work suggests the potential acceptability and feasibility of social media in the preoperative preparation process [18]. Prior work has demonstrated that utilizing a private social media platform can provide successful positive engagement and increased clinic attendance in adolescents with severe obesity [16]. This study illustrates reasons a social media group can contribute to clinical care specifically for adolescents.

This study highlights the importance of family involvement in surgery preparation for adolescents. This result is consistent with prior findings that positive family and peer support is beneficial for weight loss [35‐37]. Interventions involving a family component may increase positive health outcomes in adolescents as well as improve parent’s awareness of their child’s health and well-being [35, 38]. Finding ways to include parents in adjunct social media groups may be important to demonstrate ways to be supportive and to foster positive support.

The study had several strengths and some limitations. Despite the small sample size (n = 13) of the pilot study, we were able to reveal meaningful qualitative themes. All participants enrolled in the study completed the intervention. This research explored relevant topics of adolescents with severe obesity from Southeastern Pennsylvania. Consequently, findings are not necessarily transferrable to adolescent groups in other settings. Adolescents were not required to comment and did not receive any further increase in incentives/compensation for providing comments as opposed to providing likes. However, because incentives were not based on the content of the comments, the incentives did not introduce bias in the comments. Although social bias was a possibility, adolescents openly included self-incriminating information (i.e. forgetting to track). The comments were analyzed from a private Facebook group, which was the most popular social media platform used in our age group at the time [39]. It is unlikely that the social media platform would influence the comments of the participants, but it was not possible to assess this possibility. Although according to Pew Research Forum 2018, Facebook is no longer the most popular social media platform, studies have shown that adolescents utilize multiple platforms for different purposes (texting, video chatting, gaming, etc.) [13, 40]. Further, Facebook allowed the ability to have a private group and allowed for the continued ability to access posts, which is important for a support group. Given the changing environment of social media, future qualitative and mixed-methods studies are needed to gain insight into their future incorporation into clinical practice. Two adolescents who underwent surgery were included along with others in preparation. The presence of participants having already had surgery could have influenced group participation. However, the topics and comments from participants specifically related to post-operative behaviors were not included in the analysis as the emphasis was on pre-operative lifestyle behavior changes. To our knowledge, this pilot study is the first to qualitatively analyze social media use as a platform to deliver evidence based weight loss support to adolescents with severe obesity preparing for bariatric surgery.

Thematic analysis of social media comments from adolescents provided insights into perceived benefits and challenges of social media, factors that provided motivation, and barriers to lifestyle changes in preparation for surgery. After surgery, youth will need to continue to engage in healthy lifestyle changes for weight maintenance. Future research should include parents and explore the use of social media to keep adolescents engaged postoperatively. Understanding motivators and challenges for adolescents for lifestyle changes are critical to provide the appropriate supportive strategies for success.