Background
Methods/design
interRAI data collection and data access
Primary and secondary outcomes
Variables | Categories in interRAI Home Care | Categories in interRAI Contact Assessment | Re-coding |
---|---|---|---|
Sociodemographic factors | |||
Age | Continuous variable | Continuous variable | Categorise continuous variable to 1 = age 40–64, 2 = age 65–79 and 3 = age 80+ |
Gender | ▪ Female ▪ Male ▪ Indeterminate ▪ Unknown | ▪ Female ▪ Male ▪ Indeterminate ▪ Unknown | No change |
Ethnicity | ▪ European not further defined ▪ NZ European ▪ Other European ▪ Māori ▪ Pacific peoples not further defined ▪ Samoan ▪ Cook Island Māori ▪ Tongan ▪ Niuean ▪ Tokelauan ▪ Fijian ▪ Other Pacific peoples ▪ Asian not further defined ▪ Southeast Asian ▪ Chinese ▪ Indian ▪ Other Asian ▪ Middle Eastern ▪ Latin American/ Hispanic ▪ African (or any group of African origin) ▪ Other ethnicity ▪ Don’t know ▪ Refused to answer ▪ Response unidentifiable ▪ Not stated | ▪ European not further defined ▪ NZ European ▪ Other European ▪ Māori ▪ Pacific peoples not further defined ▪ Samoan ▪ Cook Island Māori ▪ Tongan ▪ Niuean ▪ Tokelauan ▪ Fijian ▪ Other Pacific peoples ▪ Asian not further defined ▪ Southeast Asian ▪ Chinese ▪ Indian ▪ Other Asian ▪ Middle Eastern ▪ Latin American/ Hispanic ▪ African (or any group of African origin) ▪ Other ethnicity ▪ Don’t know ▪ Refused to answer ▪ Response unidentifiable ▪ Not stated | Re-code to 1 = European, 2 = Maori, 3 = Pacific, 4 = Asian, 5 = MELAA (Middle Eastern Latin American and African), 6 = Other |
Living arrangement | ▪ Alone ▪ With spouse/partner only ▪ With spouse/partner and other(s) ▪ With child (not spouse/partner) ▪ With parent(s) or guardian(s) ▪ With sibling(s) ▪ With other relative(s) ▪ With non-relative(s) | ▪ Alone ▪ With spouse/partner only ▪ With spouse/partner and other(s) ▪ With child (not spouse/partner) ▪ With parent(s) or guardian(s) ▪ With sibling(s) ▪ With other relative(s) ▪ With non-relative(s) | Re-code to 1 = Alone, 2 = With spouse/partner only, 3 = Other (With spouse/partner and other(s) or With child (not spouse/partner) or With parent(s) or guardian(s) or With sibling(s) or With other relative(s) or With non-relative(s)) |
Domicile code | Domicile code of usual living arrangement | Domicile code of usual living arrangement | Re-code to 1 = Main urban areas, 2 = Satellite urban areas, 3 = Independent urban areas, 4 = Rural areas with high urban influence, 5 = Rural areas with moderate urban influence, 6 = Rural areas with low urban influence, 7 = Highly rural/remote areas, 8 = Area outside urban/rural profile. |
Residential status | ▪ Private home/apartment/rented room ▪ Board and care ▪ Assisted living or semi-independent living ▪ Mental health residence—e.g., psychiatric group home ▪ Group home for persons with physical disability ▪ Setting for persons with intellectual disability ▪ Psychiatric hospital/unit ▪ Homeless (with or without shelter) ▪ Long-term care facility (nursing home) ▪ Rehabilitation hospital/unit ▪ Hospice facility/palliative care unit ▪ Acute care hospital ▪ Correctional facility ▪ Other | ▪ Private home/apartment/rented room ▪ Board and care ▪ Assisted living or semi-independent living ▪ Mental health residence—e.g., psychiatric group home ▪ Group home for persons with physical disability ▪ Setting for persons with intellectual disability ▪ Psychiatric hospital/unit ▪ Homeless (with or without shelter) ▪ Long-term care facility (nursing home) ▪ Rehabilitation hospital/unit ▪ Hospice facility/palliative care unit ▪ Acute care hospital ▪ Correctional facility ▪ Other | Re-code to 1 = Private home/apartment/rented room, 2 = Homeless (with or without shelter), 3 = Other (Board and care or Assisted living or semi-independent living or Mental health residence—e.g., psychiatric group home or Group home for persons with physical disability or Setting for persons with intellectual disability or Psychiatric hospital/unit or Long-term care facility (nursing home) or Rehabilitation hospital/unit or Hospice facility/palliative care unit or Acute care hospital or Correctional facility or Other) |
Physical/Clinical factors | |||
Self-reported health | ▪ Excellent ▪ Good ▪ Fair ▪ Poor ▪ Could/would not respond | ▪ Excellent ▪ Good ▪ Fair ▪ Poor ▪ Could/would not respond | No change |
Cognitive skills for daily decision making | ▪ Independent ▪ Modified independence ▪ Minimally impaired ▪ Moderately impaired ▪ Severely impaired ▪ No discernable consciousness, coma | ▪ Independent ▪ Modified independent or any impairment | interRAI-HC Re-code to 1 = Independent, 2 = Not fully independent (Modified independence or Minimally impaired or Moderately impaired or Severely impaired or No discernable consciousness, coma) interRAI-CA 1 = Independent, 2 = Not fully independent (Modified independent or any impairment) |
Change in decision-making (as compared to 90 days or since last assessment) | ▪ Improved ▪ No change ▪ Decline ▪ Uncertain | ▪ Improved ▪ No change ▪ Decline ▪ Uncertain | No change |
Falls | ▪ Falls: in last 30 days - No falls - 1 fall - ≥2 falls ▪ Falls: 31–90 days ago - No falls - 1 fall - ≥2 falls | ▪ No fall in last 90 days ▪ 1 or more falls in the last 90 days | interRAI-HC Re-code to 1 = No fall in last 90 days (No falls in last 30 days or No falls 31–90 days ago), 2 = 1 or more falls in last 90 days (≥1 falls in last 30 days or ≥ 1 falls 31–90 days ago) interRAI-CA 1 = No fall in last 90 days, 2 = 1 or more falls in last 90 days |
Decrease in amount of food or fluid usually consumed | ▪ Yes ▪ No | ▪ Yes ▪ No | No change |
Weight loss of 5% in last 30 days or 10% in last 180 days | ▪ Yes ▪ No | ▪ Yes ▪ No | No change |
ADL self-performance ▪ Bathing ▪ Personal hygiene ▪ Dressing lower body ▪ Locomotion | ▪ Independent ▪ Independent, setup help only ▪ Supervision ▪ Limited assistance ▪ Extensive assistance ▪ Maximal assistance ▪ Total dependence ▪ Activity did not occur during entire period | ▪ Independent ▪ Supervision or any physical assistance | interRAI-HC Re-code to 1 = Independent, 2 = Not fully independent (Independent, setup help only or Supervision or Limited assistance or Extensive assistance or Maximal assistance or Total dependence or Activity did not occur during entire period) interRAI-CA 1 = Independent, 2 = Not fully independent (supervision or any physical assistance) |
Change in ADL status | ▪ Improved ▪ No change ▪ Declined ▪ Uncertain | ▪ Improved ▪ No change ▪ Declined ▪ Uncertain | No change |
IADL capacity ▪ Meal preparation ▪ Ordinary housework ▪ Managing medications ▪ Stairs | ▪ Independent ▪ Setup help only ▪ Supervision ▪ Limited assistance ▪ Extensive assistance ▪ Maximal assistance ▪ Total dependence | ▪ Independent or set-up help only ▪ Supervision or any assistance during task | interRAI-HC Re-code to 1 = Independent or setup help only, 2 = Not independent (Supervision or Limited assistance or Extensive assistance or Maximal assistance or Total dependence) interRAI-CA 1 = Independent or set-up help only, 2 = Not independent (Supervision or any assistance during task) |
Psychological indicators | |||
Self-reported mood | “In the last 3 days, how often have you felt sad, depressed or hopeless?” ▪ Not in the last 3 days ▪ Not in the last 3 days, but often feels that way ▪ In 1–2 of the last 3 days ▪ Daily in the last 3 days ▪ Could/would not respond | “In the last 3 days, have you felt sad, depressed or hopeless?” ▪ Yes ▪ No ▪ Could/would not respond | interRAI-HC Re-code to 1 = Feeling depressed in last 3 days (In 1–2 of the last 3 days or Daily in the last 3 days), 2 = Not feeling depressed in last 3 days (Not in the last 3 days or Not in the last 3 days, but often feels that way), 3 = Could/would not respond interRAI-CA 1 = Yes, 2 = No, 3 = Could/would not respond |
Social indicators | |||
Primary informal helper expresses feelings of distress, anger, or depression | ▪ Yes ▪ No | ▪ Yes ▪ No | No change |
Family or close friends report feeling overwhelmed by person’s illness | ▪ Yes ▪ No | ▪ Yes ▪ No | No change |
Two key informal helpers (relationship to person) ▪ Helper 1 ▪ Helper 2 | ▪ Child or child-in-law ▪ Spouse ▪ Partner/significant other ▪ Parent/guardian ▪ Sibling ▪ Other relative or whanau ▪ Friend ▪ Neighbour ▪ No informal helper | ▪ Child or child-in-law ▪ Spouse ▪ Partner/significant other ▪ Parent/guardian ▪ Sibling ▪ Other relative or whanau ▪ Friend ▪ Neighbour ▪ No informal helper | Re-code to 1 = Spouse or Partner/significant other, 2 = Other family (Child or child-in-law or Parent/guardian or Sibling or Other relative or whānau), 3 = Friend or Neighbour, 4 = No informal helper |
Two key informal helpers (lives with person) ▪ Helper 1 ▪ Helper 2 | ▪ No ▪ Yes, 6 months or less ▪ Yes, more than 6 months ▪ No informal helper | ▪ No ▪ Yes, 6 months or less ▪ Yes, more than 6 months ▪ No informal helper | No change |
Lifestyle factors | |||
Daily tobacco use | ▪ Yes ▪ Not in last 3 days, but is usually a daily smoker ▪ No | ▪ Yes ▪ Not in last 3 days, but is usually a daily smoker ▪ No | Re-code to 1 = Smoker (Yes or Not in last 3 days, but is usually a daily smoker), 2 = Non-smoker |
Health services utilisation | |||
Time since last hospital stay | ▪ No hospitalisation within 90 days ▪ 31–90 days ago ▪ 15–30 days ago ▪ 8–14 days ago ▪ In the past 7 days ▪ Now in hospital | ▪ No hospitalisation within 90 days ▪ 31–90 days ago ▪ 15–30 days ago ▪ 8–14 days ago ▪ In the past 7 days ▪ Now in hospital | Re-code to 1 = No hospitalisation within last 30 days (No hospitalisation within 90 days or 31–90 days ago), 2 = Hospitalisation within last 30 days (15–30 days ago or 8–14 days ago, 3 = In the past 7 days or Now in hospital) |
Emergency department use (number of times in last 90 days) | Continuous variable | Continuous variable | No change |