Background
Methods
Study design
Participants
Data collection
Data analysis
Meaning unit | Condensed meaning unit | Code | Sub-category | Category |
---|---|---|---|---|
Yes, if I think of that film with the older gentleman, that had three different exercise sets. If you listened to what he said, you can find opportunities for progression in it. You can sit in the chair and stand five times, ten times, twelve times, twenty times. You can tighten the strap in different ways, according to the instruction, a different number of times but increase all the time, if you have reached the goal, if you manage twelve times as he says in the film then you can increase to fifteen or twenty. So, the answer is there, but you have to think a little yourself as well WS5 Co-creator with COPD | Some knowledge is required to understand how to increase your own exercise training level | Exercise training progression | Exercise training principles | A requirement for information on evidence-based practice |
It [Regular contact with a physiotherapist] has really been the best. You feel that it is not so easy to cheat if they have a check on you. But I have been good, I have not cheated, but you could do it if you did not have someone who checked how you feel WS2 Co-creator with COPD | The fact that the physiotherapist has close contact gives a feeling that someone is checking up on you. This reduces the risk of cheating with the exercise training and increases the motivation to carry out the exercise training | Frequent follow-ups | Continuity in follow-ups and support | A desire for continous follow-ups and support from health care providers, peers, and significant others |
Yes I would actually like to say this home training program. Can't it come digitally like this so you can see it while you do it, something. Not that you just get a piece of paper with everything printed on it WS5 Co-creator with COPD | Wishes for a digital home exercise training program, so you can watch when you complete the exercise training | Digital exercise training program | Technical properties for individual settings | A call for a well-designed eHealth tool with high demands on individual adaptation |
Results
Participants’ characteristics
Characteristics | Persons with COPD (n = 10) |
---|---|
Age, years, mean ± SD (min–max) | 71.1 ± 10.8 (51–87) |
Sex, women/men, (n) | 6/4 |
Occupation, pensioner/gainful employment, (n) | 9/1 |
Time since COPD diagnosis, years, mean ± SD (min–max) | 9.6 ± 8.2 (1–24) |
FEV1% predicted, mean ± SD (min–max) | 49 ± 24 (20–91) |
Public health care region, Stockholm/Västerbotten, (n) | 5/5 |
Qualitative content analysis
Subcategories | Categories | Overarching theme |
---|---|---|
Broad base of disease related information | A requirement for information on evidence-based practice | Fusing with, rather than replacing existing support structures |
Exercise training principles | ||
Accessible health care providers | ||
User-friendly technology and optional features | A call for a well-designed eHealth tool along with high demands for individual adaptation | |
Technical properties for structure and planning | ||
Automatically generated responses, reminders and rewards | ||
Complement to usual rehabilitation | A desire for continous follow-ups and support from health care providers, peers, and significant others | |
An assigned health care provider | ||
Continuity in follow-ups and support | ||
Support from peers and significant others |
Fusing with, rather than replacing existing support structures
A requirement for information on evidence-based practice
Broad base of disease related information
“Yes, I think it is great that how to react in a panic situation [during breathing difficulties] is brought up. That [information] is the absolute best, I think”- Co-creator with COPD, workshop 3
Exercise training principles
“One thing that we said was important was to become aware of, or get an insight into, which exercises are good for what. That way you get even more motivated about what you are supposed to exercise”- Co-creator with COPD, workshop 4
Accessible health care providers
“But I think that everything, both the physiotherapist, all the parts [contact with the COPD team members] is really important, they were that for me/…/ the things that I have done and learned from everyone here, those working at Pulmonary rehabilitation. So, I can breathe now, and I have learned pursed-lip breathing so that I can even go for short walks.”- Co-creator with COPD, workshop 2
A call for a well-designed eHealth tool and high demands on individual adaptation
User-friendly technology and optional features
“But then you have some other problems with writing patient records and contact networks in relation to an application… We have both technical challenges and patient record challenges”- Co-creator, health care provider, workshop 5
Technical properties for structure and planning
“It is good to schedule things so that you can have some structure to follow. And you can use an app for that.”- Co-creator with COPD, workshop 5
Automatically generated responses, reminders, and rewards
“It could be an option that you get a small, like [text message]‘We see that you haven’t taken a certain number of steps, is there some reason for this?’”- Co-creator, relative to a person with COPD, workshop 3
A desire for continuous follow-ups and support
Complement to usual rehabilitation
“And that was also the reason why I stopped going to my classes [COPD training]. Because it became so difficult, when it’s far away and you have to get dressed and undressed and take patient transport and you have to walk so far when you get there…..It’s taking the whole day you know, and then it becomes too much trouble”- Co-creator with COPD, workshop 4
An assigned health care provider
“I have a hard time with self-discipline so I would really like one, a contact person who checks up on me ….. have you done that? ...and …you need to do this now…like that…I think that we all need to be seen in some way. And if it were possible with such a contact, of some kind, that would be beneficial.”- Co-creator with COPD, workshop 3
Continuity in follow-ups and support
“You know, if I for example do 12 repetitions and I feel like it doesn’t work at all, I can’t even manage 10. Then maybe I would like some contact with a physiotherapist to ask about what’s happening and why I can’t manage, that way I could get an explanation of it.”- Co-creator with COPD, workshop 4
Support from peers and significant others
..“most of all I think the films were fantastic…to see in a concrete way how people with COPD can exercise and behave in relation to physical activity and to be shown what you should do with examples.”- Co-creator with COPD, workshop 3
“But it is…like I said there is more drive when you are several people, in some way…and have a program to follow. I think that makes a big difference”- Co-creator, relative to a person with COPD, workshop 3