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Erschienen in: Quality of Life Research 1/2007

01.08.2007 | Original Paper

The future of outcomes measurement: item banking, tailored short-forms, and computerized adaptive assessment

verfasst von: David Cella, Richard Gershon, Jin-Shei Lai, Seung Choi

Erschienen in: Quality of Life Research | Sonderheft 1/2007

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Abstract

The use of item banks and computerized adaptive testing (CAT) begins with clear definitions of important outcomes, and references those definitions to specific questions gathered into large and well-studied pools, or “banks” of items. Items can be selected from the bank to form customized short scales, or can be administered in a sequence and length determined by a computer programmed for precision and clinical relevance. Although far from perfect, such item banks can form a common definition and understanding of human symptoms and functional problems such as fatigue, pain, depression, mobility, social function, sensory function, and many other health concepts that we can only measure by asking people directly. The support of the National Institutes of Health (NIH), as witnessed by its cooperative agreement with measurement experts through the NIH Roadmap Initiative known as PROMIS (www.nihpromis.org), is a big step in that direction. Our approach to item banking and CAT is practical; as focused on application as it is on science or theory. From a practical perspective, we frequently must decide whether to re-write and retest an item, add more items to fill gaps (often at the ceiling of the measure), re-test a bank after some modifications, or split up a bank into units that are more unidimensional, yet less clinically relevant or complete. These decisions are not easy, and yet they are rarely unforgiving. We encourage people to build practical tools that are capable of producing multiple short form measures and CAT administrations from common banks, and to further our understanding of these banks with various clinical populations and ages, so that with time the scores that emerge from these many activities begin to have not only a common metric and range, but a shared meaning and understanding across users. In this paper, we provide an overview of item banking and CAT, discuss our approach to item banking and its byproducts, describe testing options, discuss an example of CAT for fatigue, and discuss models for long term sustainability of an entity such as PROMIS. Some barriers to success include limitations in the methods themselves, controversies and disagreements across approaches, and end-user reluctance to move away from the familiar.
Literatur
1.
Zurück zum Zitat Embretson, S. E., & Reise, S. P. (2000). Item response theory for psychologists. Mahwah, N.J.: Lawrence Erlbaum Associates. Embretson, S. E., & Reise, S. P. (2000). Item response theory for psychologists. Mahwah, N.J.: Lawrence Erlbaum Associates.
2.
Zurück zum Zitat Lai, J. S., Cella, D., Peterman, A. et al. (2005). Anorexia/cachexia related quality of life for children with cancer: Testing the psychometric properties of the Pediatric Functional Assessment of Anorexia/Cachexia Therapy (peds-FAACT). Cancer, 104(7), 1531–1539.PubMedCrossRef Lai, J. S., Cella, D., Peterman, A. et al. (2005). Anorexia/cachexia related quality of life for children with cancer: Testing the psychometric properties of the Pediatric Functional Assessment of Anorexia/Cachexia Therapy (peds-FAACT). Cancer, 104(7), 1531–1539.PubMedCrossRef
3.
Zurück zum Zitat Gershon, R., Cella, D., Dineen, K. et al. (2003). Item response theory and health-related quality of life in cancer. Expert Review of Pharmacoeconomics and Outcomes Research, 3(6), 783–791.CrossRef Gershon, R., Cella, D., Dineen, K. et al. (2003). Item response theory and health-related quality of life in cancer. Expert Review of Pharmacoeconomics and Outcomes Research, 3(6), 783–791.CrossRef
4.
Zurück zum Zitat Gershon, R. (2005). Computerized adaptive testing. Journal of Applied Measurements, 6(1), 109–127. Gershon, R. (2005). Computerized adaptive testing. Journal of Applied Measurements, 6(1), 109–127.
5.
Zurück zum Zitat Bunderson, V. C., Inouye, D. K., & Olsen, J. B. (1986). The four generations of computerized educational measurement. In R. L. Linn (Ed.), Educational measurement (pp. 367–407). New York: Macmillan Publishing. Bunderson, V. C., Inouye, D. K., & Olsen, J. B. (1986). The four generations of computerized educational measurement. In R. L. Linn (Ed.), Educational measurement (pp. 367–407). New York: Macmillan Publishing.
6.
Zurück zum Zitat Lautenschlager, G. J., & Flaherty, V. L. (1990). Computer administration of questions: More desirable or more social desirability? Journal of Applied Psychology, 75(3), 310–314.CrossRef Lautenschlager, G. J., & Flaherty, V. L. (1990). Computer administration of questions: More desirable or more social desirability? Journal of Applied Psychology, 75(3), 310–314.CrossRef
7.
Zurück zum Zitat Reckase, M. D. (1989). Adaptive testing: The evolution of a good idea. Measurement Issues and Practice, 8(3), 11–15.CrossRef Reckase, M. D. (1989). Adaptive testing: The evolution of a good idea. Measurement Issues and Practice, 8(3), 11–15.CrossRef
8.
Zurück zum Zitat McHorney, C. A., & Cohen, A. S. (2000). Equating health status measures with Item Response Theory: Illustrations with functional status items. Medical Care, 38(Suppl 9), II43–II59.PubMed McHorney, C. A., & Cohen, A. S. (2000). Equating health status measures with Item Response Theory: Illustrations with functional status items. Medical Care, 38(Suppl 9), II43–II59.PubMed
9.
Zurück zum Zitat Ware, J. E., Bjorner, J. B., & Kosinski, M. (2000). Practical implications of Item Response Theory and computerized adaptive testing: A brief summary of ongoing studies of widely used headache impact scales. Medical Care, 38(Suppl 9), 473–483. Ware, J. E., Bjorner, J. B., & Kosinski, M. (2000). Practical implications of Item Response Theory and computerized adaptive testing: A brief summary of ongoing studies of widely used headache impact scales. Medical Care, 38(Suppl 9), 473–483.
10.
Zurück zum Zitat Cella, D., & Chang, C. H. (2000). A discussion of Item Response Theory (IRT) and its applications in health status assessment. Medical Care, 38(Suppl 9), II66–II72.PubMed Cella, D., & Chang, C. H. (2000). A discussion of Item Response Theory (IRT) and its applications in health status assessment. Medical Care, 38(Suppl 9), II66–II72.PubMed
11.
Zurück zum Zitat Wolfe, F., & Pincus, T. (1999). Listening to the patient: A practical guide to self-report questionnaires in clinical care. Arthritis Rheumatism, 42(9), 1797–1808.PubMedCrossRef Wolfe, F., & Pincus, T. (1999). Listening to the patient: A practical guide to self-report questionnaires in clinical care. Arthritis Rheumatism, 42(9), 1797–1808.PubMedCrossRef
12.
Zurück zum Zitat Detmar, S. B., Muller, M. J., Schornagel, J. H. et al. (2002). Health-related quality-of-life assessments and patient-physician communication: A randomized controlled trial. JAMA, 288(23), 3027–3034.PubMedCrossRef Detmar, S. B., Muller, M. J., Schornagel, J. H. et al. (2002). Health-related quality-of-life assessments and patient-physician communication: A randomized controlled trial. JAMA, 288(23), 3027–3034.PubMedCrossRef
13.
Zurück zum Zitat Velikova, G., Brown, J., Booth, L., Smith, A., Bown, P., Lynch, P., & Selby, P. (2003). A randomized study of quality of life measurements in oncology practice - effects on patient well-being and process of care. Proceedings of the American society of clinical oncology, 22, 728. Velikova, G., Brown, J., Booth, L., Smith, A., Bown, P., Lynch, P., & Selby, P. (2003). A randomized study of quality of life measurements in oncology practice - effects on patient well-being and process of care. Proceedings of the American society of clinical oncology, 22, 728.
14.
Zurück zum Zitat Jacobsen, P. B., Davis, K., & Cella, D. (2002). Assessing quality of life in research and clinical practice. Oncology, 16(Suppl 9), 133–139.PubMed Jacobsen, P. B., Davis, K., & Cella, D. (2002). Assessing quality of life in research and clinical practice. Oncology, 16(Suppl 9), 133–139.PubMed
15.
Zurück zum Zitat Bode, R. K., Cella, D., Lai, J. -S. et al. (2003). Developing an initial physical function item bank from existing sources. Journal of Applied Measurements, 4(2), 124–136. Bode, R. K., Cella, D., Lai, J. -S. et al. (2003). Developing an initial physical function item bank from existing sources. Journal of Applied Measurements, 4(2), 124–136.
16.
Zurück zum Zitat Bode, R., Lai, J. -S., Heinemann, A. et al. (2006). Expansion of a physical function item bank and development of an abbreviated form for clinical research. Journal of Applied Measurements, 7(1), 1–15. Bode, R., Lai, J. -S., Heinemann, A. et al. (2006). Expansion of a physical function item bank and development of an abbreviated form for clinical research. Journal of Applied Measurements, 7(1), 1–15.
17.
Zurück zum Zitat Lai, J. -S., Cella, D., Chang, C. -H. et al. (2003). Item banking to improve, shorten and computerize self-reported fatigue: An illustration of steps to create a core item bank from the FACIT-Fatigue Scale. Quality of Life Research, 12, 485–501.PubMedCrossRef Lai, J. -S., Cella, D., Chang, C. -H. et al. (2003). Item banking to improve, shorten and computerize self-reported fatigue: An illustration of steps to create a core item bank from the FACIT-Fatigue Scale. Quality of Life Research, 12, 485–501.PubMedCrossRef
18.
Zurück zum Zitat Lai, J. -S., Cella, D., Dineen, K. et al. (2005). An item bank was created to improve the measurement of cancer-related fatigue. Journal of Clinical Epidemiology, 58(2), 190–197.PubMedCrossRef Lai, J. -S., Cella, D., Dineen, K. et al. (2005). An item bank was created to improve the measurement of cancer-related fatigue. Journal of Clinical Epidemiology, 58(2), 190–197.PubMedCrossRef
19.
Zurück zum Zitat Lai, J. -S., Dineen, K., Reeve, B. et al. (2005). An item response theory based pain item bank can enhance measurement precision. Journal of Pain and Symptomology Management, 30(3), 278–288.CrossRef Lai, J. -S., Dineen, K., Reeve, B. et al. (2005). An item response theory based pain item bank can enhance measurement precision. Journal of Pain and Symptomology Management, 30(3), 278–288.CrossRef
20.
Zurück zum Zitat MSP for Windows (Version 5) [computer program]. (2000). MSP for Windows (Version 5) [computer program]. (2000).
21.
Zurück zum Zitat Bode, R. K., Lai, J. -S., Cella, D. et al. (2003). Issues in the development of an item bank. Archives of Physical Medicine and Rehabiitation, 84(4 Suppl 2), S52–S60.CrossRef Bode, R. K., Lai, J. -S., Cella, D. et al. (2003). Issues in the development of an item bank. Archives of Physical Medicine and Rehabiitation, 84(4 Suppl 2), S52–S60.CrossRef
22.
Zurück zum Zitat Carlson, L. E., Speca, M., Hagen, N. et al. (2001). Computerized quality-of-life screening in a cancer pain clinic. Journal of Palliative Care, 17(1), 46–52.PubMed Carlson, L. E., Speca, M., Hagen, N. et al. (2001). Computerized quality-of-life screening in a cancer pain clinic. Journal of Palliative Care, 17(1), 46–52.PubMed
23.
Zurück zum Zitat Chang, C. H., Cella, D., Fernandez, O. et al. (2002). Quality of life in multiple sclerosis patients in Spain. Multiple Sclerosis, 8(6), 527–531.PubMedCrossRef Chang, C. H., Cella, D., Fernandez, O. et al. (2002). Quality of life in multiple sclerosis patients in Spain. Multiple Sclerosis, 8(6), 527–531.PubMedCrossRef
24.
Zurück zum Zitat Detmar, S. B., & Aaronson, N. K. (1998). Quality of life assessment in daily clinical oncology practice: A feasibility study. European Journal of Cancer, 34(8), 1181–1186.PubMedCrossRef Detmar, S. B., & Aaronson, N. K. (1998). Quality of life assessment in daily clinical oncology practice: A feasibility study. European Journal of Cancer, 34(8), 1181–1186.PubMedCrossRef
25.
Zurück zum Zitat Taenzer, P., Bultz, B. D., Carlson, L. E. et al. (2000). Impact of computerized quality of life screening on physician behavior and patient satisfaction in lung cancer outpatients. Psycho-Oncology, 9(3), 203–213.PubMedCrossRef Taenzer, P., Bultz, B. D., Carlson, L. E. et al. (2000). Impact of computerized quality of life screening on physician behavior and patient satisfaction in lung cancer outpatients. Psycho-Oncology, 9(3), 203–213.PubMedCrossRef
26.
Zurück zum Zitat Velikova, G., Wright, P., Smith, A. B. et al. (2001) Self-reported quality of life of individual cancer patients: Concordance of results with disease course and medical records. Journal of Clinical Oncology, 19(7), 2064–2073.PubMed Velikova, G., Wright, P., Smith, A. B. et al. (2001) Self-reported quality of life of individual cancer patients: Concordance of results with disease course and medical records. Journal of Clinical Oncology, 19(7), 2064–2073.PubMed
27.
Zurück zum Zitat Velikova, G., Brown, J. M., Smith, A. B. et al. (2002) Computer-based quality of life questionnaires may contribute to doctor-patient interactions in oncology. British Journal of Cancer, 86(1), 51–59.PubMedCrossRef Velikova, G., Brown, J. M., Smith, A. B. et al. (2002) Computer-based quality of life questionnaires may contribute to doctor-patient interactions in oncology. British Journal of Cancer, 86(1), 51–59.PubMedCrossRef
28.
Zurück zum Zitat Velikova G., Booth L., Smith A. B. et al. (2004). Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial. Journal of Clinical Oncology, 22(4), 714–724.PubMedCrossRef Velikova G., Booth L., Smith A. B. et al. (2004). Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial. Journal of Clinical Oncology, 22(4), 714–724.PubMedCrossRef
29.
Zurück zum Zitat Yount, S., Davis, K., Cella, D. et al. (2003). Brief patient symptom assessment: Research and clinical applications. To be presented at the 10th World Conference on Lung Cancer. Yount, S., Davis, K., Cella, D. et al. (2003). Brief patient symptom assessment: Research and clinical applications. To be presented at the 10th World Conference on Lung Cancer.
30.
Zurück zum Zitat Hahn, E. A., Cella, D., Dobrez, D. G. et al. (2003). Quality of life assessment for low literacy Latinos: A new multimedia program for self-administration. Journal of Oncology Management, 12(5), 9–12.PubMed Hahn, E. A., Cella, D., Dobrez, D. G. et al. (2003). Quality of life assessment for low literacy Latinos: A new multimedia program for self-administration. Journal of Oncology Management, 12(5), 9–12.PubMed
31.
Zurück zum Zitat Higginson, I. J., & Carr, A. J. (2001). Measuring quality of life: Using quality of life measures in the clinical setting. BMJ, 322(7297), 1297–1300.PubMedCrossRef Higginson, I. J., & Carr, A. J. (2001). Measuring quality of life: Using quality of life measures in the clinical setting. BMJ, 322(7297), 1297–1300.PubMedCrossRef
32.
Zurück zum Zitat Buxton, J., White, M., & Osoba, D. (1998). Patients’ experiences using a computerized program with a touch-sensitive video monitor for the assessment of health-related quality of life. Quality of Life Research, 7(6), 513–519.PubMedCrossRef Buxton, J., White, M., & Osoba, D. (1998). Patients’ experiences using a computerized program with a touch-sensitive video monitor for the assessment of health-related quality of life. Quality of Life Research, 7(6), 513–519.PubMedCrossRef
33.
Zurück zum Zitat Davis, K. M., Chang, C. -H., Lai, J. -S., & Cella, D. (2002). Feasibility and acceptability of computerized adaptive testing (CAT) for fatigue monitoring in clinical practice. Quality of Life Research, 11(7), 134. Davis, K. M., Chang, C. -H., Lai, J. -S., & Cella, D. (2002). Feasibility and acceptability of computerized adaptive testing (CAT) for fatigue monitoring in clinical practice. Quality of Life Research, 11(7), 134.
34.
Zurück zum Zitat Bergstrom, B. A., & Lunz, M. E. (1999). CAT for certification and licensure. In F. Drasgow & J. B. Olson-Buchanan (Eds.), Innovations in computerized assessment (pp. 67–92). Mahwah, NJ: Lawrence Erlbaum Associates Publishers. Bergstrom, B. A., & Lunz, M. E. (1999). CAT for certification and licensure. In F. Drasgow & J. B. Olson-Buchanan (Eds.), Innovations in computerized assessment (pp. 67–92). Mahwah, NJ: Lawrence Erlbaum Associates Publishers.
35.
Zurück zum Zitat Gershon, R. C. (2004) The ABCs of Computerized Adaptive Testing. In T. M. Wood & W. Zhi (Eds.), Measurement issues and practice in physical activity. Champaign, IL: Human kinetics. Gershon, R. C. (2004) The ABCs of Computerized Adaptive Testing. In T. M. Wood & W. Zhi (Eds.), Measurement issues and practice in physical activity. Champaign, IL: Human kinetics.
36.
Zurück zum Zitat Ware, J. E. Jr., Kosinski, M., Bjorner, J. B. et al. (2003) Applications of computerized adaptive testing (CAT) to the assessment of headache impact. Quality of Life Research, 12(8), 935–952.PubMedCrossRef Ware, J. E. Jr., Kosinski, M., Bjorner, J. B. et al. (2003) Applications of computerized adaptive testing (CAT) to the assessment of headache impact. Quality of Life Research, 12(8), 935–952.PubMedCrossRef
37.
Zurück zum Zitat Bergstrom, B., & Cline, A. (2003). Beyond multiple choice: Innovations in professional testing. CLEAR Exam Review. Summer. Bergstrom, B., & Cline, A. (2003). Beyond multiple choice: Innovations in professional testing. CLEAR Exam Review. Summer.
38.
Zurück zum Zitat van der Linden, W. J., & Pashley, P. J. (2000) Item selection and ability estimation in adaptive testing. In W. J. van der Linden & C. A. W. Glas (Eds.), Computerized adaptive testing: theory and practice. Norwell, MA: Kluwer. van der Linden, W. J., & Pashley, P. J. (2000) Item selection and ability estimation in adaptive testing. In W. J. van der Linden & C. A. W. Glas (Eds.), Computerized adaptive testing: theory and practice. Norwell, MA: Kluwer.
Metadaten
Titel
The future of outcomes measurement: item banking, tailored short-forms, and computerized adaptive assessment
verfasst von
David Cella
Richard Gershon
Jin-Shei Lai
Seung Choi
Publikationsdatum
01.08.2007
Verlag
Springer Netherlands
Erschienen in
Quality of Life Research / Ausgabe Sonderheft 1/2007
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-007-9204-6

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